Foster kids' meds get scant attention
An Albany foster mother recalls a 5-year-old boy medicated so heavily that he lived in an endless cycle of sleeping, rising for a meal, taking his pills and collapsing back into bed.
A Salem nurse who volunteered at a camp for Northwest foster kids last summer says she was shocked at the hundreds of psychiatric drugs she gave out to children every day.
A Multnomah County court officer tells of a teen in foster
care who loved skateboarding but became so overwhelmed by
his meds that he could barely hold his head up.
More than one in four Oregon children in foster care -- some as young as 2 -- are being given powerful psychiatric drugs developed to treat depression, anxiety, trauma and other mental health issues.
The medications include potent drugs such as Prozac and Zoloft. Many have not been approved for children, their side effects can be severe and there's little evidence about how they might act on developing brains and young bodies.
About 2,400 kids a year in foster care are on psychiatric drugs. The medications can help troubled children who suffer abuse, neglect or other trauma. Even so, The Oregonian found that children in foster care took psychiatric drugs at a much higher rate -- more than four times higher -- than other Oregon children.
The state's child welfare system creates incentives for foster parents that could encourage psychiatric drug use: The meds make the kids less trouble. And the foster parents can be paid double for the "special needs" of kids on psychiatric drugs.
The state, the legal guardian for children in foster care, does little to monitor the use of psychiatric drugs.
"Nobody is tracking it in a way that makes sense," says Judge Nan Waller, the chief family law judge in Multnomah County. "We need to make sure we have the level of oversight our children deserve."
Tannie Mowdy has eight children younger than 18 living in
her tan, two-story house on a country acre six miles east of
Albany.
A 14-year-old girl takes Prozac, and two boys, ages 12 and 13, take Wellbutrin -- anti-depressants often prescribed to children in Oregon foster care.
Mowdy, who has been a foster parent to nearly 300 children in 26 years, says psychiatric medications have helped one teenage girl in her care finish high school and a boy in her home "slow his mind down" so he can focus on even the most routine tasks.
Sitting in her dining room stacked high with puzzles, games
and toys, Mowdy says what she knows has come from talking to
her doctor and pharmacist.
Sometimes, she says, it's a "hit-or-miss learning process."
Mowdy hasn't forgotten the 5-year-old boy who came to her home several years ago with a bottle of clonidine, a blood pressure medication that's often used to calm children down.
The little boy would get up in the morning, eat breakfast, take his pills, and then go back to bed for a nap, Mowdy remembers. He'd repeat the routine at lunch.
"I went to the doctor and said, 'We've got to get this kid off of this.' "
The doctor was happy to comply, Mowdy says. He had put the child on medication to control unruly behavior and so he wouldn't be kicked out of his foster home.
One girl came to Mowdy's home on eight psychiatric medications, she says. "Too many kids take too many medications."
The Oregonian used the state's public records law to
discover how many children under state supervision are on
psychiatric medications.
The records show 29.4 percent of children in foster care were on at least one psychiatric drug in a recent 12-month span.
The newspaper then asked the state's Medicaid program how many of the 203,000 other children also covered by the Oregon Health Plan had been on a psychiatric drug. The answer: 6.3 percent.
University of Maryland professor Julie Magno Zito, one of
the nation's leading researchers into psychiatric drug
use among children in foster care, says it's hard to
judge the rate. States must have strong standards and
oversight, she says, especially because the effects of these
drugs on children aren't well understood.
"You start treating the side effect of drugs with other drugs, and it becomes a vicious circle."
People who work in Oregon's child welfare system say they've been surprised by how young some kids on medications are.
Kevin George, foster care program manager at the Department of Human Services, says he remembers a child as young as 18 months receiving a psychiatric drug, although he can't recall the specific drug or circumstances.
But Medicaid records show more than half of kids in foster care who receive the medications are about 13 or older.
Lynn Lanham, a nurse at Salem-Keizer public schools, saw that firsthand last summer when she volunteered at Camp to Belong, an Idaho camp for kids 8 to 20 years old who live in Pacific Northwest foster homes.
Of the 96 kids at Camp to Belong last June, about 60 percent came with psychiatric meds.
"I was struck at how many psychotropics I was giving to
these kids," Lanham said. "I have been a camp
nurse at other camps and never given that much."
Steve Lindeman, a field manager for the Citizen Review Board in Multnomah County, which oversees child welfare cases, remembers a skateboarding teen who was energetic and excited the first time he met him.
When his case came up for review a few years later, Lindeman said, "He was on significant medications that created what some people referred to as the 'zombie effect.' "
Lindeman was part of a group of experts formed in 2004 after
judges and other court officials questioned the number of
psychiatric drugs prescribed to children under state
supervision.
The state refused to release the group's work, but The Oregonian obtained it from other sources. It shows big problems.
The group discovered medication is not being managed properly, training for caseworkers and foster parents has been discontinued, and systems for tracking medications are not in place, according to minutes from an October 2004 meeting.
One recommendation: Take away foster parents' power to give a child psychiatric medications without state consent.
Why?
The group's report says "foster parents may have an incentive to describe their foster children's mental health issues with a very negative bias in order to obtain serious mental health diagnoses and consequent prescriptions."
That's because foster parents can receive higher monthly payments from the state if a child has "special needs" -- and children taking psychiatric drugs often earn that designation. These payments can average $600 a month, more than double Oregon's regular rates.
"If the child is off the medication, there would be
less money coming to the home," Lindeman said. "We
don't think that's a good setup."
George, the state's foster care manager, said he isn't sure why the group's proposal to change the consent rules wasn't adopted. "Maybe we should revisit that."
Foster parents are required to seek consent for other medical treatment -- for example, if a child needs his tonsils out.
Don Darland, from the Oregon Foster Parent Association, says
he wouldn't mind if the same rules of consent applied
to a child starting psychiatric drugs.
The state is "the legal guardian, and they have to be involved," he says. "We are parenting that child 24/7, and we need to be in the conversation, too."
Darland has cared for more than 50 children in his home and says about half were prescribed psychiatric meds. "I'm not going to advocate for a medical restraint unless that child really needs it."
The state did adopt many of the expert group's recommendations when it wrote new rules in May. The rules encourage second medical opinions in cases where the children are younger than 6 or where kids are on more than three psychiatric drugs at once.
Other states have panels of doctors or teams of nurses to review drug use. Oregon has Teri Shultz, one lone nurse to consult when children in foster care are taking psychiatric drugs.
Before the new policy was adopted this spring, Shultz recalls seeing only one case in the past 10 years.
Since May, she's reviewed about 40 cases, and referred almost all of them for second opinions. That's about 3 percent of foster children on psychiatric drugs -- still far fewer than experts recommend. The group advising state officials wanted children with more than two medications to have their cases reviewed.
Under that proposal, about 28 percent of kids would have
their prescriptions reviewed, state records show.
Dr. Bruce Goldberg, the state Human Services director, says the standards should be even tougher.
As a physician, Goldberg says, he thinks ideally every child in foster care on more than one psychiatric drug should get a second look.
Goldberg wasn't familiar with his agency's policy
until The Oregonian raised questions about it. He asked Dr.
Nancy Winters, a professor and child and adolescent
psychiatrist at Oregon Health & Science University, to
review the new state rules to see whether they are sound.
The state policy is inadequate, Goldberg says.
"It needs to be re-evaluated."
Waller, the judge who hears the custody cases of hundreds of children in her courtroom every year, says she's seen how psychiatric drugs have helped some children. But she's also heard a teen complain of drowning in "an alphabet soup of medications."
Everyone needs to look for other ways to ease the trauma for these kids, she says. "Under our watch, we need to make sure we don't make the problem worse."
Part 2
Law requires notification when meds are prescribed
Following through on the state's legal requirements is "a relatively rare phenomenon," an official saysMany of the adults responsible for children in foster care don't know about Oregon's Bobby Jackson law.
Jean Ettel, Bobby's first-grade teacher at Willard Elementary, says she remembers 7-year-old Bobby as a well-behaved boy who was small for his age.
Bobby still had his baby teeth, says Ettel, who also remembers that he liked to play ball.
She didn't know he was taking a drug to moderate his behavior.
Bobby was given imipramine, an antidepressant doctors had recommended to control his daytime tantrums and nighttime sleeping problems.
"Sometimes his little hands would shake when he would write," Ettel says.
On Jan. 5, 1993, Bobby collapsed at his Eugene foster home after running uphill from school. An autopsy found a lethal dose of imipramine in his body.
The law that the 1993 Legislature passed following Bobby's death requires foster parents to notify the Department of Human Services within one working day when a child in their care gets a mental health prescription.
Then, caseworkers must notify a child's parent, lawyer and court-appointed special advocate -- or CASA -- about why the drug is being given, the dosage and possible side effects.
But that doesn't always happen.
Steve McCrea, program coordinator with CASA for Children, Multnomah and Washington counties, says notification is "a relatively rare phenomenon."
The law also allows a child's parent, lawyer or advocate to petition a judge to order a second opinion.
"Quite frankly," says Kevin George, the state's foster program manager, "that doesn't happen very often."
George says notification is required by law, but it still depends upon the individual foster parent and caseworker. There's no statewide database tracking whether children get the follow-up they need.
Bobby's teacher says she's sorry to hear that.
The last time Ettel saw Bobby, he was preparing to race a bigger boy in his same class to the foster home where both of them lived.
Ettel gave Bobby a head start.
"He stood at the door and waved at me and said: 'Goodbye. I'll see you tomorrow.' "
Other states have tighter rules for medication use
Oregon is not alone in dealing with the use of psychiatric medications for children in foster care. Here's a comparison:
Consent:
In Oregon, foster parents can begin giving a child a psychiatric drug without approval of a parent, caseworker or judge.
In Illinois, an administrator within the Department of Children and Family Services must give consent before a psychiatric drug is started or a prescription changed.
In Tennessee, biological parents must consent to the use of psychiatric medications when possible. If a parent cannot provide consent, a regional nurse reviews the file and consents to medically necessary medication. Tennessee officials say consent rules and other safeguards have helped lower the percentage of children in foster care on mental health drugs from 25 percent in 2004 to about 20 percent last year.
Tracking medications:
Oregon does not have a single database tracking psychiatric drugs. Foster parents are required to complete medication logs that are kept in children's files.
Tennessee developed a Web-based program to track mental health medication use by children who are on more than three psychotropic drugs; more than one drug from the same class of medications; children ages 5 and younger; and children lacking appropriate informed consent.
In Utah, every child who enters foster care is assigned a registered nurse stationed in a local child welfare office. The state also maintains a database with information about every medication prescribed.
Medical oversight:
Oregon's child welfare system has one registered nurse to consult on psychiatric medications.
In Illinois, before a child in foster care starts a psychiatric drug, every prescription is screened by a team of psychiatric nurses and reviewed by doctors at the University of Illinois at Chicago School of Psychiatry.
Second opinion:
In Oregon, a second opinion is optional and rare.
In Tennessee, experts under contract at three universities provide guidance in complex cases.
Washington required second opinions for hundreds of prescriptions for attention-deficit disorder drugs given to children in its Medicaid program. Reviewers found half the children were overmedicated or on the wrong drug.
Brent Walth: 503-294-5072; brentwalth@news.oregonian.com; Michelle Cole: 503-294-5143; michellecole@news.oregonian.com
